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    • Home
    • About Us
      • Contact Us
      • Biography of Jamie's Life
      • Funds' Background
    • Stories & Thoughts
      • What is that Love Like?
      • Jamie's Christmas Tree
      • Poem
    • Ways You Can Help
      • Make a Donation
      • No Cost Donating
    • What is Going On
      • Upcoming Events
      • Current News
      • News Archive
    • Holiday Adoptions
      • Holiday Giving 2025
      • Holiday Giving 2024
      • Holiday Giving 2023
      • Holiday Giving 2022
      • Holiday Giving 2021
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    • Community Grants Made
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      • 2024 Grants
      • 2021-2023 Grants
      • 2018-2020 Grants
      • 2015-2017 Grants
      • 2012-2014 Grants
      • 2009-2011 Grants
      • 2006-2008 Grants

810-798-0909

  • Home
  • About Us
    • Contact Us
    • Biography of Jamie's Life
    • Funds' Background
  • Stories & Thoughts
    • What is that Love Like?
    • Jamie's Christmas Tree
    • Poem
  • Ways You Can Help
    • Make a Donation
    • No Cost Donating
  • What is Going On
    • Upcoming Events
    • Current News
    • News Archive
  • Holiday Adoptions
    • Holiday Giving 2025
    • Holiday Giving 2024
    • Holiday Giving 2023
    • Holiday Giving 2022
    • Holiday Giving 2021
    • Holiday Giving 2020
    • Holiday Giving 2019
    • Holiday Giving 2018
    • Holiday Giving 2017
    • Holiday Giving 2016
    • Holiday Giving 2015
    • Holiday Giving 2014
    • Holiday Giving 2013
    • Holiday Giving 2012
    • Holiday Giving 2011
    • Holiday Giving 2010
    • Holiday Giving 2009
    • Holiday Giving 2008
    • Holiday Giving 2006/2007
  • Community Grants Made
    • 2025 Grants
    • 2024 Grants
    • 2021-2023 Grants
    • 2018-2020 Grants
    • 2015-2017 Grants
    • 2012-2014 Grants
    • 2009-2011 Grants
    • 2006-2008 Grants

Christmas Giving 2007

Once again, our friends, new and old, have amazed us with their generosity!  This year we raised in excess of $4,100 and adopted four families.  Here is a bit of their stories:


FAMILY #1

Machita, a 23 year old single mother, has one beautiful son, Jaylin.  Jaylin was deprived of oxygen during his delivery and had severe developmental delays including contracting Infantile Spasms.  Many of you will be familiar with this form of seizure activity as it was the disease that eventually took Jamie from us.  This type of seizure disorder is the worst possible kind for a child under the age of five and kills one in five children who get it.  Of those who do not die, 80% will be severely to profoundly retarded – meaning that they will not be able to function to any degree in a normal capacity or care for themselves ever.  The remaining 20% will be mildly to moderately affected.


UPDATE AS OF DECEMBER 2008

Jaylin passed away at the age of 21 months in March 2008.  He died from complications relating to Infantile Spasms.  Jaylin was buried in one of the outfits that we gave him for Christmas.  When we adopted this family they were on public assistance and Jaylin had never had a “brand new” outfit of his own.  Since Jaylin's passing, his mother, Machita, told us that she is moving to Wisconsin for a job in the health care field and intends to pursue her education also in the area of health care.


FAMILY #2

Melissa, a single Mom with two girls, Destiny (age 3) and Haley (age 5) is pregnant and due in the summer of 2008.  Destiny is her special needs child.  She has Pulmonary Vessel Disease (PVD) (Disease of the pulmonary blood vessels which are those blood vessels which carry blood  to and from the lungs) and Wiedemann Rautenstrauch Syndrome often commonly known as “the aging disease” – most children with  this disease do not live past the age of five (*see information from Google search below for description).  She is on a feeding tube and is “failing to thrive”.   The family was in desperate need of food.  This family has some “basic needs” requirements.


*Wiedemann-Rautenstrauch syndrome (also known as neonatal progeroid syndrome) is an extremely rare genetic disorder characterized by an aged appearance at birth (neonatal progeroid appearance); growth delays before and after birth (prenatal and postnatal growth retardation); and deficiency or absence of the layer of fat under the skin (subcutaneous lipoatrophy), causing the skin to appear abnormally thin, fragile, and wrinkled. In addition, for reasons that are not understood, abnormal deposits of fat may accumulate around the buttocks, the areas around the genitals and the anus (anogenital area), and the area between the ribs and the hips (flanks).

Affected infants and children also have distinctive malformations of the head and facial (craniofacial) area including an unusually prominent forehead (frontal bossing) and sides of the skull (parietal bossing), causing the head to appear abnormally large (pseudohydrocephalus); unusually small, underdeveloped (hypoplastic) bones of the face and abnormally small facial features; a small 'beak-shaped' nose that becomes more pronounced with advancing age; and/or sparse scalp hair, eyebrows, and/or eyelashes. Most infants and children with Wiedemann-Rautenstrauch syndrome also have unusually thin arms and legs; abnormally large hands and feet; progressive neurological and neuromuscular abnormalities; varying degrees of mental retardation; and severe delays in the acquisition of skills requiring the coordination of mental and muscular activities (psychomotor retardation). In addition, in many cases, affected infants and children are prone to repeated respiratory infections that may result in life-threatening complications. Wiedemann-Rautenstrauch syndrome is inherited as an autosomal recessive trait.


UPDATE AS OF JANUARY 2009

This family was extremely grateful for all of our assistance.  Because of the generosity of our donors this family was given a substantial supply of food and food gift cards as well as clothing and toys for the children. This eased the burden on Mom, Melissa.  Last Spring, Destiny graduated out of the MIPP program and would have been in the program for special needs children age four and over in the Fall, but her family moved away.


FAMILY #3

Amber is a single Mom with two girls, Alexa (age 1) and Brooke (age 2).  Alexa is the special needs child and has Shaken Baby Syndrome reportedly due to abuse from her Father when her Mother was not present.  Amber left her job to care for her daughter and now lives with her mother, Julie, who is working to support the family.  Alexa is on a feeding tube.  This family needed all basic necessities including: clothes, diapers, wipes and food.


UPDATE AS OF JANUARY 2009

Alexa is still on a feeding tube and is now also on oxygen and pain medication.  This family is doing well.  Amber has regained full custody of Alexa.  The father has been sentenced and is now serving a term in prison.  Julie and Amber continue to work hard at their jobs and taking turns caring for the girls.  Julie reported that the clothes, diapers, wipes, food and gift cards came at a time of real difficulty for the family and helped to ease a great deal of the financial and emotional burden that they were experiencing.  The dress clothes for the adults were used for numerous court appearances that they had to attend due to the physical trauma suffered by Alexa.  In the spirit in which they were given, as the girls have outgrown the clothes, Julie reports that they have passed them on to others in need.


FAMILY #4

Logan’s family is made up of Jessica (age 22), Daniel (Age 25), Logan (1 year), Kayla (Age 3) and Jacob (Age 8).  Dad lost his job and Mom works midnights at a local retailer to try to make ends meet.  Logan is the special needs child who had a twin that died at a couple of months of age.  He was born very premature and has cerebral palsy.  He is functioning at developmental age of six months.  The family is struggling and had a car accident since we adopted them which totaled their only vehicle.


UPDATE AS OF JANUARY 2009

Dad, Daniel, has gotten a job and the family has purchased a car.  The family’s Maternal Grandmother passed away in 2008 and because of her young age, has left a young son for Jessica and Daniel to care for and raise.  The gifts, food and gift cards helped them through a difficult time.  The gas cards helped them to get Logan to his numerous doctor's and bracing appointments for his cerebral palsy.  They are still struggling, but are very thankful for our gift of Christmas caring!


In 2007, we partnered with Kohl’s (at 26 Mile Road and the Van Dyke Expressway) to provide for the needs of our families.  Items were purchased at other retailers as well, but Kohl’s offered us a discount of approximately 65% on all items so the bulk of our shopping, where possible, was done with them.  We cannot say enough about how helpful Kohl’s, their staff and manager (Mario Estrada) have been throughout our 2007 fundraising efforts.  Not only did they offer us an amazing discount on the items that we needed (meaning that we received approximately $6,000 worth of goods for $2,000 worth of payment), but they also provided volunteers to wrap the gifts and donated a $500 cash contribution for our adopted families. You cannot ask for a company that is more dedicated to the community and the welfare of children!  Thank you Kohl’s!!!


Here is a list of general items that we provided to our families, please note that it is not completely comprehensive:


Children

  • Coats
  • A pair of snow pants each
  • Hats, mittens/gloves for each child
  • Two pair of Pajamas each
  • At least three winter clothing outfits each
  • One pair of shoes each
  • One pair of winter boots each
  • Hair care items such as barrettes
  • A bouncy seat
  • Crib Sheets
  • Blankets
  • At least three toys
  • Puzzles
  • Books
  • Several small stocking stuffer items
  • Diapers
  • Wipes
  • Formula
  • Parents
  • A winter coat each
  • At least two winter clothing outfits each
  • A pair of shoes each
  • A pair of boots each
  • Socks
  • Bedding (sheets, comforter/blankets) for two families
  • Bathroom towels for two families
  • Pots & pans set for two families
  • Silverware for one family
  • Personal care products such as toothbrushes and soap
  • A bathroom rug
  • Over $1,300 in food gift cards
  • Over $250 gas gift cards

Kroger donated a $25 gift card and Costco donated $100 in gift cards.  We also had a number of items that were donated that were in miscellaneous sizes or were duplicates for our families.  We wrapped up these items (noting the items type, size and gender on the tag) and gave them to the MIPP program to distribute.  The MIPP program brought a commercial size truck to pick up our donations and take them back to their facility to distribute to the families.


YOU ARE AMAZING!  Many thanks to all who participated.  We hope that we can count on your support again next year as we continue to try to make our world a better place for children and families who need a temporary hand up. 

Christmas Giving 2006

For 2006, we came to you with the story of two families in need of help.  Following are brief reminders of their stories:

FAMILY #1

Family one was made up of three people – Mom, Dad & Ethan.  Ethan was a 17 month old little boy who was developmentally delayed and had been diagnosed with leukemia.  Mom did not work, as Ethan needed special care and needed to avoid exposure to “outside germs” whenever possible due to the medications he was on.  Ethan had numerous appointments for chemotherapy, therapy and general doctor visits. Ethan’s father was working as many hours as he could get through a temporary agency due to the poor job market.  They got rid of their family dog because they could not afford to feed and properly care for a pet.   They needed jackets, shoes, boots, clothes, food and gas cards. 

UPDATE AS OF DECEMBER 2008

Ethan passed away in 2007.  This family has moved, the father now has a job.  They send their thanks and are grateful for MIPP’s assistance with Ethan’s therapy and for our Christmas care, but wish to mourn in privacy.

FAMILY #2

The second family was made up of four people – Wendi (Mom), Dad, Gage (5 years old) and Kelsi (2 years old).  Kelsi had a heart transplant at one month of age and was on an immunosuppressant to prevent rejection of the new heart.  As a result, she was isolated from as many germs as possible.  She could only leave her home for doctors’ appointments and Mom quit working to tend to her medical needs.  She was diagnosed with Pfeifffer’s syndrome (a yahoo search yielded the medical basics listed below if you are interested) and her medical problems kept her confined to her home.  Gage had severe allergies and Mom needed to be available for emergency situations at school.   They needed jackets and outerwear, boots, shoes, clothes, food and gas cards.

UPDATE AS OF DECEMBER 2008

This family has relocated to Indiana due to the father's job.  Mom, Wendi, sent an email reporting that they are all doing well in their new home.  Gage continues to suffer from numerous allergies, but is doing well in school.  Wendi reports that they have decided to let Kelsi enjoy life and are not keeping her homebound.  She has been taking dance lessons and recently performed in her first recital.  Wendi says it was a difficult decision to take a chance at exposing Kelsi to germs and other children (she continues on medication that lowers her immune system that is necessary for her heart transplant). She has enjoyed being in classes with her friends.  Because the family has allowed Kelsi to be with more people, Mom has been able to continue her career as a cosmetologist.  The gifts, food, gift cards and toys were a tremendous help in 2006.  At that time, Mom was unable to work as she could not leave Kelsi and Dad had his work hours cut.  It was a very difficult time financially for them and the donations helped them so that they could pay their mortgage and utility bills.  They send their thanks!

I am pleased to inform you that thanks to the generosity of people like you, we raised over $1,700.00 to help these families!  We adopted two families and gave a third family a gift card toward food.  Here  is how  we spent your kind donations:

  • Snow suits for each of the 3 children
  • A pair of shoes for each of the 3 children
  • A pair of boots for each of the 3 children
  • 2 pair of pajamas  for each of the 3 children
  • Hats and gloves for each of the 3 children
  • Socks for Ethan & Gage
  • Underwear for Kelsi
  • Crib Sheets  
  • 13 educational toys  between the 3 children
  • 10 outfits for Ethan
  • 8 outfits each for Kelsi and Gage
  • Books for each of the 3 children
  • Clothing for Ethan’s parents
  • Coats for Kelsi & Gage’s parents
  • Hats, scarves & Gloves for each of the parents
  • Over $550.00 in food, diapers and gift cards for these items
  • $125.00 in gift cards for gas

And even more items were donated already wrapped or used for the use of our families.  Thank you for helping!  And if you were unable to help for Christmas 2006, please keep us in mind for next year!  We adopt families every year between Thanksgiving and Christmas.


*ADDITIONAL INFORMATION 

What is Pfeiffer Syndrome?

Pfeiffer Syndrome (first reported in 1964) is a condition resulting from premature fusion of the sutures of the skull and deformity of the skull. Characteristics include:

  • skull is prematurely fused and unable to grow normally (craniosynotosis)
  • bulging wide-set eyes due to shallow eye sockets (occular proptosis)
  • underdevelopment of the midface
  • broad, short thumbs and big toes
  • possible webbing of the hands and feet    


Why did this happen?

There is no link between anything the mother did or did not do while she was pregnant and the occurrence of Pfeiffer Syndrome. Doctors believe it is caused by changes in the gene (FGFR 1 & FGFR 2) mapped to chromosome's 8 and 10. The cause of the change is not currently known. 

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